Menu Close

Prader-Willi Syndrome (PWS)

In June 20, 2018, Community Living of Rhode Island, Inc., “CLRI” opened its first 100% Prader-Willi Syndrome (PWS) Residential, Employment / Vocational and Day Program services in Warwick Rhode Island, for the individuals with Prader-Willi Syndrome “PWS.”

About PWS

PWS is a complex multistage genetic disorder which affects multiple systems in the body. It significantly impacts behavior, mental and physical health. Individuals with PWS require cognitive, social, learning and health support throughout their lives. Individuals with Prader-Willi Syndrome typically have mild to moderate intellectual impairment and learning disabilities. Behavioral problems are common, including temper outbursts, stubbornness, and compulsive behavior such as picking at the skin. Sleep abnormalities can also occur. A person with PWS can live a healthy, fulfilling life when they have ongoing, consistent support from people who understand the intricacies of the syndrome.

Goal Attainment

The primary goal of Community Living of Rhode Island is to provide individuals with PWS with quality support and treatment to meet their needs. Including services and assistance, to lessen the impact of health problems which shorten lives, and common characteristics of the syndrome that impairs community integration and self-sufficiency.

Services

The fact that the individuals with Prader-Willi Syndrome often experience difficulties at home or in Residential settings, creates many other challenges, Therefore, Community Living of Rhode Island service provision includes the ability to provide individuals with PWS a safe and stable environment to learn, grow, become stable, and stay healthy. The daily life of participants with Prader-Willi living in CLRI programs involves a structured blend of social, recreational and behavioral support in which staff perform therapeutic support services. Activity schedules include planned leisure and recreation, training in activities of daily living, and an emphasis on developing and enhancing appropriate social and behavioral interactions. Homes are kept to the size of 3 individuals, without overwhelming those who are uncomfortable with large groups. CLRI Residential Programs offer individual bedrooms for all our participants alike.

General

To learn more about PWS, and Community Living of Rhode Island service provision, call (401) 739 – 9006 and schedule an appointment for free one on one session with the experts.